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セナママ
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12歳の息子は5歳の時に小児がん神経芽腫を発症し、治療を続け丸7年が経過 。難治性神経芽腫、多発骨転移。 これまでに化学療法、手術、放射線、MIBG内照射、3回の自家移植 レチノイン酸内服 H30/6月~R2/12月オラパリブ内服治験 R3/2月~バレメトスタット内服治験参加 。
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